Tuesday, May 31, 2011

Racing and Raising Funds

My good friends over at Run in Texas are holding a fundraiser tonight to defray some of the costs for Jared's much-needed cognitive therapy treatment this summer.  If you haven't heard of them, check them out at www.runintexas.com.  I'm so excited that more and more folks are learning about Auditory Processing Disorder and I'm so blessed to have friends who care about my family. Hopefully I'll see you at one of their races soon!

Saturday, May 28, 2011

The Right/Left Dilemma Continues

While at the pool, a man said, "Wow! You've got a lefty athlete? That's really cool!" At first, I didn't understand. I looked at Jared and he was holding a racquet in his left hand. He would throw the ball up with his right, and then hit with his left. He was really good, too! He had been throwing a football with that same man, using his right hand.  He's good with all sports, but I guess I'd never watched him with a racquet.




As I've mentioned in previous posts, we don't know which hand he favors for most things. His 3 year old preschool teacher said he used his left. His four year old teacher had him use his right. The other day I gave him a pen to write his name and he took it with his left and began writing. He switched over to his right after the first letter. Dr. C. believes this has to do with his brain hemispheres not communicating. She said she will figure out if he is right or left handed this summer. I guess we'll wait and see!

So God created human beings in his own image. In the image of God he created them; male and female he created them. Genesis 1L27 (NLT)

Sunday, May 22, 2011

Messiness No More!

Guess what? The room doesn't look like these pictures anymore. We are ready to learn today! Here are the latest pictures. Anyone have any ideas for the big, white walls?



I am leaving you with a gift—peace of mind and heart. And the peace I give is a gift the world cannot give. So don’t be troubled or afraid.  John 14:27 (NLT)

Friday, May 20, 2011

Taking Time to Process

Most people describe me as a quick thinker. I am. It helped me obtain great grades in school, but it has also gotten me in trouble. I love guessing games. Since I'm a quick thinker AND I love guessing games, sometimes I jump into conversations before the person speaking can blurt out what he/she will say. My most memorable of these experiences was when I was in Turkey and a police officer was attempting to tell us something. He spoke no English. None. He was using body movement to tell us something. I was guessing... out loud. When he touched his hair, I blurted, "You wash your hair of us!" When he pointed at something, I blurted out an entire fictional story of how we were supposed to go to a certain location and find a certain man and fill out paperwork before we realized he was pointing at a chair in which to sit. I am more "filtered" now, but I still get excited about guessing games.

And my son? Not a "quick thinker". Well, I don't know if he'd be described that, but he cannot quickly process things, due to his APD. Thank God I'm married to a man who also lets things sink in before he speaks. I am, however, trying my best to be patient and not "guess" what my son is telling me before he says it.

I came across a Facebook page today. It's called "Madison Ray for Auditory Processing Disorder Awareness". It's a cute little girl's journey with the disability, so go check it out.

Also, please watch this video. This explains -- SO WELL -- how Jared processes things. I want to make sure his teacher sees this too.
Give thanks to the Lord, for he is good! His faithful love endures forever. Psalm 118:1 (NLT)

Tuesday, May 17, 2011

"But it could be a different condition"

This morning, as I opened up my laptop to check email, the very first thing I read in my news headlines was this:
Think it's ADHD? You might be wrong. With the disorder making headlines, you may assume that's what's behind a kid's distracted or inattentive nature. But it could be a different condition...

I was suddenly very awake. As I clicked the link, I thought, "Wow! Could it be? Could APD FINALLY be making national headlines? Could this disorder truly be getting the attention it deserves?" I was hoping that any step towards APD awareness could tremendously help my child and millions of other kids with it. I even thought, "Maybe the medical journal will start to get pressure to recognize this disability!" Yes, I promise you. All those things entered my mind as I clicked on the link, with sheer excitement. 

But, alas... no APD mention. However, the www.everydayhealth.com did mention this other condition that Jared has. Here's the article. Now that I'm wide awake, I'm going to exercise. I'm hoping all who read this have a very blessed day! Grace and peace to you from God our Father and the Lord Jesus Christ. 1 Corinthians 1:2 (NIV)

Is It ADHD or Dyslexia – or Both?

It's not always easy to tell whether ADHD or dyslexia is causing your child to be inattentive, distracted, and have difficulty with reading and writing or verbal instructions. In some cases, your child may have both conditions.

Medically reviewed by Pat F. Bass III, MD, MPH
 
For many children, attention deficit hyperactivity disorder (ADHD) and the learning disorder dyslexia go hand-in-hand. As many as one in four children with ADHD also have dyslexia, while between 15 and 40 percent of children with dyslexia have ADHD. In those cases, children and their families must work to manage both conditions.

Distinguishing between ADHD and dyslexia may at first seem difficult, especially for a parent who has no experience with either disorder. Is your child skipping words when reading because he cannot read them or because he is just speeding ahead? With ADHD making headlines, your first thought might go toward attention problems rather than reading difficulties. But it is important to look at the whole picture when assessing your child’s performance.

“With ADHD there are more behavioral kinds of problems,” says special education expert Nancy Mather, PhD, associate professor in the department of special education, rehabilitation, and school psychology at the University of Arizona in Tucson. “Dyslexia is limited to reading and writing.”

Despite these distinctions, experts have observed a link between ADHD and dyslexia. “Similar areas of the brain are involved in both disorders,” explains Mather. They both appear to lead to problems with executive function, memory, and processing symbols quickly. Another similarity is that children with these disorders often have normal to high intelligence and high creativity, but are frustrated academically. What’s different is how these disorders play out — with dyslexia, it’s in terms of reading and writing difficulties, and with ADHD, it involves behavior.

ADHD and Dyslexia: Reaching a Diagnosis
The process of finding out what is causing your child’s problems could be lengthy. Because girls with ADHD tend to quietly tune out rather than act out, figuring out your child’s learning challenges could be a bit more difficult with a daughter.

“You need neuropsychological testing to tease that out,” says ADHD specialist Eugene Arnold, MD, professor emeritus of psychiatry at the Ohio State University in Sunbury.

In order to figure out which disorder your child has — or if it’s both — you will need:
  • Teacher input. Talking to teachers about your child’s behavior in class and performance on schoolwork can be revealing. Children with ADHD may have trouble paying attention, remembering and following verbal directions, or sitting still, but if they don’t have dyslexia, their ability to read and write is often just fine — indeed, many children with ADHD are avid readers. As they get older, they tend to do better with written instructions than verbal ones. On the other hand, children with dyslexia may try to avoid reading and writing, or mix up letters when learning to write, but do well with oral testing and comprehension.
  • A learning ability evaluation. If you suspect a learning disability such as dyslexia, you have the right to ask for an evaluation through your public school system. This is also true for homeschooled children, points out Mather. Testing can help identify dyslexia.
  • ADHD evaluation. In order to get an ADHD diagnosis and begin treatment, you will need a psychiatric assessment from an ADHD expert.
Succeeding With ADHD and Dyslexia
Just as the conditions are related but different, so are the solutions. The first step is to work with your child’s school.

“A lot of information is collected by the team at the school,” says Mather. The team may include a special education teacher or counselor, your child’s teachers, and any experts you want to include. If you suspect dyslexia, Mather advises including a dyslexia expert in team meetings. Based on test results, you and the team can develop a plan, usually called an IEP (Individualized Education Plan), for helping your child succeed in school.
Children with ADHD and dyslexia often require:
  • ADHD medication. With the right medical treatment, children with ADHD learn better. This is especially true for children who also have dyslexia — they need to be able to focus in order to learn how to read and write in a more intensive way.
  • Specialized reading and writing training. If your school system has teachers trained in dyslexia on staff, your child may be able to get this additional help during the school day. However, many families find that their child requires tutoring after school. For children with ADHD, this can be especially challenging after a long day when ADHD medication may be wearing off. Talk to your doctor about using additional smaller doses of medication to keep your child’s attention focused until dinner time.
  • Classroom accommodations. When you put together the classroom plan for your child with ADHD, you may need to include such things as taking breaks during long work periods, being able to get up and move around the classroom frequently, or being seated away from distractions. Be cautious about being overly reliant on audiobooks or verbal instruction for children with dyslexia, however. Mather points out that learning to read and write is still essential. Specialized tutoring may be necessary.
Though challenges are ahead, there is also great potential. With hard work and structure, children with ADHD and dyslexia can be successful in school.

Sunday, May 15, 2011

Praying for a Miracle

"Highly skilled educational advocate, therapist, and instructor with extensive successes improving services for exceptional, learning-challenged average to gifted children and adults. Adept at integrating cutting-edge instructional techniques to link learning with fun. Skilled at training professionals to identify diverse learning difficulties. Broad expertise in administering educational testing and therapy. Strong relationship builder with students and parents as well as a facilitator of positive relations between teachers and students." These words are some of the many written on Dr. Champagne's "resume". It also says that her students improve IQ scores, classroom performances, and grades, as well as go on to college.

I just sent in my registration for Jared's summer Cognitive Therapy Program. He will be meeting with Dr. C. on Tuesdays and Thursdays for the next three months. I'm excited that he will be able to work with such a talented, caring professional. I am truly praying for a miraculous summer.

This past week, I shared Jared's diagnosis with many visiting family friends. I heard so often that he showed no signs and people just couldn't even comprehend it. Even though I explain it's an invisible disability, it's very visible to us and to his teachers. He is so young... and charming... and adorable. These are the characteristics that are visible. You must spend time with him to hear the stumbling, uncertain speech or the dyslexia. It's there. That is why I'm praying for this miracle.

Give thanks to him who alone does mighty miracles.His faithful love endures forever. Psalm 136:4 (NIV)

Wednesday, May 11, 2011

A Neurologist in the Family

Tonight I went to dinner with my dad and some old family friends. I haven't seen these folks in years, so it was a lot of fun. The friendship between them and my parents is such a unique, fun story. Let me share it.

When my parents were at their very first Air Force duty station in New Mexico, they lived in a cul-de-sac and soon made friends with their neighbors. That was in 1972. When the first couple left the base in 1973, the group decided to meet up again in the summer of 1974. My mother suggested a cottage in North Carolina for a week that summer. They had such a good time that they decided to make it an annual vacation. Every year, since 1974, my parents have vacationed with these other couples. Isn't that astounding? They all have different political views, religions, etc. yet they still have a blast with each other.

They have been to several continents and many phenomenal places. Canada, Scotland, Mexico, Italy, and the Carribean are only a few of the places. This summer they will be going on a river cruise from Prague to Paris. The couples currently live in Nevada, Illinois, Arizona, Texas and Georgia yet they always meet for their summer vacation. We eleven children have joined them a few times on the vacation or at various weddings or celebrations. Even though we're not related, they are like family.

As I was sitting at dinner with three of the four couples who were able to make it to Texas for a surprise party for my mom, I was trying to remember exactly what kind of doctors two of the group were. And, wouldn't you know, one of them is a neurologist! Steve, the neurologist, and his wife are the one couple who didn't make it. He actually specialized in pediatric neurology. Wow. Obviously, 8 months ago, I wouldn't have cared that much, but now? Man, I have so many questions. I can't wait to email him to see if he has any ideas/expertise with APD.  In all my research, I couldn't even get an appointment with a neurologist regarding Jared's disability. Now, i have one "in the family". What a blessing!

 I rejoice in your word  like one who discovers a great treasure. Psalm 119:162 (NLT)

Monday, May 9, 2011

"It's Not a Tumor"

As I have mentioned before, no one seems to know the cause of Auditory Processing Disorder. I know my child didn't have lead poisoning, which some say is a cause. He didn't have severe head trauma. There wasn't a childhood virus. I was at the birth and I don't believe my child was deprived of oxygen. I mean, the doctors didn't mention it and he came right out. He doesn't have a tumor, which some experts have even included in the list of possible causes of this severe disability. (Or I could just say, "It's not a tumor", in my best Arnold voice.) The only thing that I can somewhat connect is ear infections. Apparently multiple ear infections can cause APD.  I know a bunch of kids who have had more than Jared, however, and they don't have APD. The doctor never mentioned putting tubes in his ears, so I don't believe his few were that horrible.

He did have a couple issues with swimmer's ear, because he is a little fish. But, I haven't found a connection between that and APD. The body and brain are mysteries to me!

And, here is my little fish at the water park yesterday:
If the whole body were an eye, where would the sense of hearing be? If the whole body were an ear, where would the sense of smell be? 1 Corinthians 12:17 (NIV)

Saturday, May 7, 2011

Questioning

Many people ask me what APD looks like in my house. I'll give you an example. It's a little more annoying than a kid asking you a question over and over again. We all know what that's like... especially when your child is excited about something. Well, today we went to Schlitterbahn for the first time this season. You want to know what yesterday and today sounded like?

Yesterday:
J: Are we going to Schlitterbahn tomorrow?
Me: Yes. We are.
J: Tomorrow, are we going to Schlitterbahn?
Me: Yes
J: Is tomorrow after today?
Me: Yes
J: Are we going to Schlitterbahn after today?
Me: Yes, we are.
J: Is the morning tomorrow?
Me: Yes.
J: Huh? What did you say? I can't hear you.
Me: I said "yes"
J: Are we going to Schlitterbahn in the morning?
Me: Yes
J: When we wake up are we going to Schlitterbahn?
Ray: Jared, your mom said "yes". Please stop asking.
J: Mom, Is tomorrow after today?
Me: Yes.
J: What? What did you say?
Me: I said, "yes"
J: So, are we going to Schlitterbahn tomorrow?
Me: Yes
J: Huh? What did you say?
Me: We're going to Schlitterbahn tomorrow. Please stop asking me.

(and that was one of about 4 episodes JUST like that)

Today:
J: Are we going to Schlitterbahn today?
Me: Yes. In about an hour.
J: What? What did you say? Are we going?
Me: Yes. At 9:30am
J: When are we going to Schlitterbahn?
Me: In a little while. After we go on a bike ride.
J: Is today tomorrow?
Me: Yes (he asks this question often because he remembers our conversation from yesterday)
J: Mom, are we going to Schlitterbahn?
Me: Yes, Jared, we're going in a little while.
J: What? When are we going?
Me: I will let you know when we're going.
J: I can't wait to go to Schlitterbahn. Are we going to Schlitterbahn?
(and the conversation goes on and on.)

What can I say? He loves a water park!

As I mentioned, "annoying" doesn't begin to describe these conversations. I stop what I'm doing. I answer him to his face, yet he still asks the same questions over and over again. We have gotten used to it, and we try to help him feel more "confident" with our answers. But, something just doesn't seem to click inside his head. When people hear him do this, they wonder if he's "messing with them". His teacher thought he was. Some of our friends ask, "Why doesn't he take my answer? Why does he ask you again?" I wish I knew why he does this. I don't. All I know is that my youngest son, without APD, is starting to mimic him (because he wants to be just like his big brother) and I will admit that my patience with that is starting to wear thin.

Always be joyful. Never stop praying. Be thankful in all circumstances, for this is God’s will for you who belong to Christ Jesus. 1 Thessalonians 5:16-18 (NIV) 

Friday, May 6, 2011

Dunson Did It

As I have mentioned before, a lot of my late nights are spent researching obscure APD stories. I have to use some distinct parameters in an advanced search to find "the good stuff". Because most people haven't heard of the disability, it's hard to find much more than a definition here and there. But tonight, I found out about a college basketball player named Dodie Dunson. He had a number of articles written about him lately because he was a finalist for the Lowe's senior CLASS award (he didn't end up winning it). The award, for Celebrating Loyalty and Achievement for Staying in School®, focuses on the total student-athlete and encourages students to use their platform in athletics to make a positive impact as leaders in their communities. Here are some things I found in various articles. (I'm too tired to do a bibliography and I'm hoping no one cares that I'm not citing sources.)

Aside from his reputation as a Bradley basketball co-captain, Dunson is probably best known for a smile that never leaves his face and an optimistic spirit that never seems to waver. However, he has APD. The crazy thing is, he wasn't diagnosed until he started college. The 2005 Pantagraph Player of the Year had to leave Iowa State after one year because he was floundering academically (this is when he was diagnosed with severe dyslexia/APD). He finally ended up at Bradley.

The disability impacted Dunson’s ability to comprehend written and orally communicated words. Bradley’s academic support staff steered him to a learning specialist, whom he works with on word recognition and reading comprehension, skills many take for granted. Dunson’s routine also includes reviewing note cards, taking homemade practice exams, writing and re-writing essays. There is no glamour in that … just gradual progress and, ultimately, a diploma.

His grade-point average has climbed to 3.67. He has made the Athletic Director’s Honor Roll the past five semesters, twice with a perfect 4.0.

"For me it's a real challenge. I had to challenge myself to get it done," said Dunson. "My parents always told me, 'if you believe, you can achieve."

Yep, I like finding stories like his!

For I can do everything through Christ,who gives me strength. Philipians 4:13 (NLV)

Thursday, May 5, 2011

Ear Brain Connection

Besides working with Jared at home, I’m also researching a number of techniques that we think will benefit Jared. Dr. C. had mentioned The Listening Program, that focuses on the power of music through psychoacoustic treatments. It’s supposed to help people overcome auditory processing challenges—moving from a “disorganized” to an “organized” system.

Certain classical music, like that of Mozart, Haydn and Vivaldi, has specific structure, producing sound waves in organized patterns. Within these patterns are vital elements including time, frequency and volume. When listening to music, the ear is receiving the musical sound waves—waves that arrive in different frequencies, measured in Hertz (Hz). These frequencies stimulate the brain, and thus affect different functions of the mind and body.

So, these techniques are designed to stimulate, or “exercise,” the different functions of the auditory processing system. This enables the brain to better receive, process, store and utilize the valuable information provided through the varied soundscapes in our lives such as music, language and the environment in which we live.

Doesn’t that sound interesting? Maybe it does to me because I’m a musician. I stumbled across a video on YouTube regarding this kind of therapy. It's an Australian Primetime special. The one thing I have learned (over and over again) is that our friends across the oceans seem to be leagues ahead of the U.S. in helping children with disabilities. I don't quite understand that, but I can save that topic for another blog entry.


However, as it is written: “No eye has seen, no ear has heard, no mind has conceived what God has prepared for those who love him” 1 Corinthians 2:9 (NIV)

Tuesday, May 3, 2011

Cognitive Therapy

As I mentioned in my previous post, Jared needs cognitive therapy. In essense, his brain needs to learn how to work correctly. Therefore, Dr. Champagne will be meeting with him this summer. She recommends 90 minutes twice a week, so we are going to do that instead of have him work with a teacher at his school. I pray we can make great strides this summer with teaching him phonics at home, along with Dr. C. helping his brain process things.

I am confident that if anyone can help Jared, it's Dr. C. Not only does she have tons of credentials and various doctorates, she also has a Phd in counseling. She believes that changing the way he thinks can help his brain process. APD kids have the tendency to overreact. They are different from kids who don't have a disability, and can "get away with things". Sometimes APD kids feel they are "stuck" and can't communicate their way out of a situation. In addition, negative emotions produce seratonin and dull the memory. She believes that's what Jared is dealing with now. She is using therapy supported by the National Institute for Learning Development. Their website has great information.

As you can imagine, Dr. C's "Academic Achievement Day Camp" is a cost we weren't anticipating. I wish I knew more kids with neuro disabilities, so I could get a discount with referrals. We have asked our families to help contribute to this undertaking and our family members are being very supportive. Praise God!

Be joyful in hope, patient in affliction, faithful in prayer. Romans 12:12 (NIV)