Wednesday, February 29, 2012

Creepy Sleeping

I've noticed the sleepwalking more in the past few months. Before that, I only knew that sometimes I'd hear noises and just figured Jared talks in his sleep... which he does. When we were in Colorado last month, I noticed him walking around the hotel room at night and not knowing what he was doing. A few weeks ago, I heard a crash at night and I ran upstairs and Jared was on the floor, by his bed. He was in pain. He couldn't tell me what happened, exactly. When he did "wake up", he told me that he thought the bed was the ground and stood up and started walking (off the bed). He fell onto a book he had been reading and it actually caused his leg to bleed a little.

Last night, I heard his door open and footsteps running/banging around. Those footsteps sounded frantic. I heard him saying something that I couldn't understand. I kept saying, from downstairs, "Are you alright?" I had my hands full with work and couldn't get up there right away. He wasn't really responding to me, but I could hear him talking about something. A minute later, I went upstairs, worried he was sick. I went into his room... keeping it dark, because his little brother was asleep in his bed. I walked around the entire upstairs saying his name. He didn't answer. I raised my voice... "Jared!" "Jared! Where are you?" I went into his room again. His bed was empty. My voice got louder. I turned to leave his room and he was STANDING on top of his dresser, against his wall. I calmly asked him if he was okay. He had no idea what was going on. He was mumbling something. I picked him up and put him in bed. His eyes were open this entire time. It was creepy. His eyes stayed open as he was in bed, with his covers... asleep. Weird.

Things I'm thankful for right now: 1) that I don't watch horror movies or else I might not have been able to sleep last night; my sweet child became a creepy, silent statue, taller than I am, hiding behind me, 2) that we have a great home security system with door chimes so I'll know if he ever crosses into the unknown (after seeing him, I don't doubt it's a huge reality he could walk down the street, completely oblivious), 3) We have good insurance, because the probability of him breaking a limb is high, due to him enjoying  high places while he's sleeping, and 4) that I have faith in a God, who I believe will protect him. If not, I might never sleep again!

Now faith is confidence in what we hope for and assurance about what we do not see. Hebrews 11:1 (NIV)

Tuesday, February 28, 2012

Birthdays and Birthdays

The smallest month packs such a big punch in our household. I barely feel like I can come up for air. I will say, however, that I am so blessed. I am the mother of some seriously cool boys. I dig them. I love celebrating with them. I still can't believe that I have this precious gift of motherhood. Happy February birthdays to my boys!



The Lord will watch over your coming and going both now and forevermore.Psalm 121:8 (NIV)

Monday, February 20, 2012

Karate Time

We are in our third week of karate. We decided that after 5 seasons... or technically 6, if you count his season when he was 18 months old... we were trying a new sport. He didn't want to play soccer. It was hard for me to agree that he will not play soccer anymore. It was much harder than I'd like to admit. I'm coming to the realization that he won't be playing in the 2022 FIFA World Cup. That probably sounds silly to most, but hey, a mom can dream, right?

He's doing very well with karate. I had read that it was a great sport for kids with invisible disabilities, such as Jared's. He loves it. It teaches self control, which is something he really needs.

We're praying it'll be a perfect fit for the coming months!

Whatever you do, work at it with all your heart, as working for the Lord, not for human masters.... Colossians 3:23 (NIV)

Saturday, February 18, 2012

Seven

What a whirlwind of a month! I promise to start writing more, but I just had to stop and shout out a "Happy Birthday" to my beautiful son! 


May he be blessed over and above anything we could ever imagine!

"God bless you and keep you, God smile on you and gift you, God look you full in the face and make you prosper." Numbers 6:24-26, MSG

Tuesday, January 17, 2012

Finding My 1 in 5!

Let me tell you about my friend, Brice.

I first remember seeing Brice within the early weeks of my freshman year in college. Out of more than 20,000 students, I saw him often. He lived in the dorm across from mine. He was always chatting with someone, and seemed very popular. Even though we didn't hang within the same social circles, we shared a few classes. We talked in the quad or cafeteria, etc. Brice was the kind of guy who always made you smile. He had this laid back, positive persona and his hugs... oh my... Brice hugs were the best hugs around. He always acted like you were the most important person in the world and he would give you a huge hug to make you believe it. He had no idea how those hugs made some of my glummest days more bearable. Fights with my boyfriend? Blech. Running into Brice in the Quad and getting a "hello hug"? Much better. Even though we were quite possibly on opposite ends of the spectrum of politics/religion, there was always something to connect you to Brice. You'd have to meet him. You'd love him.

During my senior year, his dad died and my heart hurt for him. I didn't know what to do or say. I knew he liked snow boarding so I got him a few magazines, even though it seemed so little. But, Brice was the greeting guy with the hugs. We weren't that close. There were no deep talks... or phone conversations. He was Brice... the guy that everyone seemed to know. And, after college, his love of snowboarding led him to Colorado. Since I also lived in Denver, we started hanging out often.  He was a great swing dance partner, a laid back ear at the pub, and someone with whom I adored spending time.

So, when I was planning a trip to Denver, I contacted him through Facebook to see if we could link up. We hadn't seen each other in 11 or so years, since I had lived there. But, if you know Brice, he's the kind of friend you just pick right up with. We decided to meet at Wahoo's for dinner.

{{Here's where my night gets crazy. In college, Brice's greeting hugs (his 6'4" self hugging my 5'9" self and swinging me around and around like it was nothing) made the weight of my day lighter. And, here he is, nearly 20 years later, making the weight of my day... and year...lighter.}}

Jared was being his awkward self at the beginning of dinner so I explained to Brice that he has APD. I didn't even describe what it was before Brice said, "Oh yeah. I have that. Auditory Discrimination." (check the right panel of this blog to see the definition.) Of course, in my head I was thinking, "No. You don't understand. I don't think you get what it is. There's no way you have this." Of course, Brice - in his casual way - told me that he never even knew he had it when he was a kid. His mom told him he had this learning disorder when he was an adult. When he was a kid, he just remembered being in therapy at a very early age and doing phonics therapy when the other kids were in PE class, etc. 

What? Was I hearing this correctly? I think my jaw actually dropped as the wheels in my head started spinning so fast I couldn't even articulate all the questions I had for him. "Did it just disappear?" "How are you so 'normal'?" "How did I never know your brain jumbled words around?" "How were you such a good student?"  "How did you get through college professor's lectures?" "Don't you have a Masters Degree?" "How do you have this great job? "How do you have so many friends?" When I explained to him all the negative things I've researched and how, as a mom, I feel like this APD brings a life sentence of heartache and pain (like this YouTube video from last year's blog entry), he couldn't believe it.

I still couldn't believe that he was talking about the same thing Jared has. I never thought he had bad spelling or writing skills. He never looked puzzled during our conversations. It's definitely not to the extent of what Jared has right now. He may have been more extreme as a child, and his proactive mom putting him in therapy at an early age helped.

He shared how he still doesn't "hear" a bunch of what people say. He believes that's why he has a mumbling issue. (Again, I never thought of him as a mumbler, but all these years of memories were flashing through my head as I tried to find some time when I felt he was "different". I couldn't.) At dinner, he would stumble over some words and then point it out, like "See that? That's it right there." Whoa. I was sitting across the booth from 2 really great guys with APD.

Some experts believe that 1 in 5 kids have APD. In America, I've seen the number as 1 in 10. Yet, I've never met anyone my age... let alone, had a 20 year friendship with someone who has this invisible learning disability. And if you didn't get the gist from this blog entry... if you met him, you'd never even know that he had it. It's truly invisible.

After a tough APD weekend with my child, God knew I needed this success story! It's better than the best hug I could imagine.

I pray that the God who gives hope will fill you with much joy and peace while you trust in him. Then your hope will overflow by the power of the Holy Spirit. Romans 15:13 (NCV)

 



Thursday, January 12, 2012

Spelling & Report Cards

Tomorrow is Jared's first "real" spelling test. I've been wondering how he'd do, so I gave him a pre-test this morning. He did fantastic! He only struggled with one word. I'm so happy for him.

I do know that each day is different with him. There are some days where his schoolwork makes you want to say, "APD? What APD?" There are other days, however, where every single word he writes, including his name, is the most bizarre writing I've seen. I'm hoping that tomorrow will be a good day and he'll be able to spell all his words, and recite his memory verse, to the best of his ability.

He gets so excited when he does well. He's going around saying, "I can write in curvis" (he swaps some letters around at times). He wrote all his spelling words in cursive and he is proud.

Tomorrow, we receive his second report card. I was thinking back to when I was a kid and I don't ever remember feeling anxious about report cards. My parents didn't make a big deal out of them, as long as my brother and I received "A's"... which we did. And, as an A student, I knew everything would be fine. I remember my friends stressing out about their parents seeing their report cards. I'm now wondering if God saved me from my school day grade stress because he knew I'd be so anxious about receiving Jared's report cards. Even if I tell myself, "It's okay, Kat. It's no biggie. He's 6 years old", inside I feel like a cheerleader in the last few seconds of a tied championship game, filled with anticipation and angst. Go, Jared, Go!

So those who rely on faith are blessed along with Abraham, the man of faith. Galatians 3:9 (NIV)




Sunday, January 8, 2012

I Am His Dinner, He is My Chocolate Cake

Today I stumbled upon a blog entry written by a mom who's young daughter has APD. Her child was crying because she couldn't spell a word (we go through that around here often). I hurt for the mom AND the child, as I read the entry. 

Okay -- side note -- Jared JUST walked in here and said, "Mommy, I love you and I want to show God's love to you by giving you this." He pulled out 2 yellow flowers that he just picked. {melt my heart}

So, anyway, the mom posted this great poem. You can read her blog entry here if you'd like to read more.  I enjoyed this poem. Hope you do too.

You Are My I Love You 
Author: Maryann K Cusimano

I am your parent you are my child
I am your quiet place, you are my wild
I am your calm face, you are my giggle
I am your wait, you are my wiggle
I am your audience, you are my clown
... I am your London Bridge, you are my falling down
I am your carrot sticks, you are my licorice
I am your dandelion, you are my first wish
I am your water wings, you are my deep
I am your open arms, you are my running leap
I am your way home, you are my new path
I am your dry towel, you are my wet bath
I am your dinner you are my chocolate cake
I am your bedtime, you are my wide awake
I am your finish line, you are my race
I am your praying hands, you are my saving grace
I am your favourite book, you are my new lines
I am your nightlight, you are my sunshine
I am your lullaby, you are my peek-a-boo
I am your kiss goodnight, you are my I love you. ♥
 
No one has ever seen God; but if we love one another, God lives in us and his love is made complete in us. 1 John 4:12 (NIV)