Saturday, August 18, 2012

Finding the Right Brain Work

Have you ever gotten so behind on laundry that you see stacks and stacks of clean laundry, ready to be folded, and you just want to run and hide? That's how I've been feeling about writing lately. So much has happened this summer, regarding Jared. I wish I would have written all the events, meetings, feedback, etc. but it was never just "one thing". It was a big pile of overwhelming "laundry", that I ended up falling to my knees instead of typing here.

Jared has finished another summer with Dr. Champagne. The thing is, however, we need to continue working with her. I have no idea how to make that happen. Jared's brain is like mush at the end of the school day. I can't imagine him being okay with going on to another hour or hour and a half of therapy. But, if we don't get him in therapy with her, will he ever get better? After all the folks I've met on this journey, I'm thinking "no". 

Dr. C. is phenomenal. She knows Jared like no other and I do not believe there is a better advocate, other than myself, for my son. She knows what he needs. She knows what his complex, multifaceted brain needs. She knows that the help that he's getting through the program at the school is not enough. She's even working with us to see if there's anyway to get insurance to help with his therapy. That's huge.

I'm awaiting a callback for a scheduled meeting with Jared's principal and teacher regarding his learning. Dr. C. is willing to come to the school to meet with him. But, how will that work? He is already excused, three times a week, for his "intervention program". I am starting to believe (as Dr. C. already knows) this intervention program may actually not help him as much as many think it will. We MUST work on his working memory! He can learn all he can, in whatever new and exciting ways, but if we don't have his working memory in tact, is it really helping? 

In the past 19 months, we have confirmed that Jared's biggest problems are 2 things: working memory and part to whole. I will go into detail about those, along with many other things we discovered this summer, in future blog entries. Right now, I'm just trying to figure out the next step on our journey. How can I find the right "brain work" for my sweet boy?

Are not five sparrows sold for two pennies? Yet not one of them is forgotten by God. Indeed, the very hairs of your head are all numbered. Don’t be afraid; you are worth more than many sparrows. Luke 12:6-7 (NIV)

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